As someone who both works with people who have acquired brain injury and I have a brain injury myself, one of the common issues is the lack of self- awareness of the effects on daily living the brain injury has.
Living with the effects of an acquired brain injury has its own unique issues, and daily living is no longer a simple task. Working around medication regimes, memory problems, fatigue and possibly decreased mobility are some of the more common listed effects of acquired brain injury, but what about the effects on the person?
After an operation for hydrocephalus (fluid on the brain) I found that I was suffering from fatigue and that I was swearing, which was not me, often I would say to myself “this is not me why am I doing this” which would make me more frustrated.
Then I met Kelly from Cygnet North East, who explained to me how my brain is working harder than it was before the operation and this could be why I am feeling fatigued. Kelly went on to explain that the fatigue was leading to frustration which was possibly why I was swearing, I started making connections to my brain and how it was working.
Having the insight that Kelly from Cygnet North East gave me helped make connections to my brain and its conditions that I would never of made on my own, once I made those connections I was able to put better coping strategies in place, and work with my brain instead of working against my brain.
Having a lack of insight into the effects, is a well documented element of having an acquired brain injury, from my own personal experience I would recommend seeking support from someone like Kelly from Cygnet North east, not to gain insight into your own brain injury and how it affects you, also so you can get support in putting coping strategies in place and move forward, and learn to live with your brain again.
After receiving support from Kelly I made connections with my brain, learnt how it works after the operation, put coping strategies in place and was able to gain employment.
I will be posting another blog about my employment journey soon.
In the meantime, this is me getting the pressure monitored in my brain, before my brain surgery.